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ADAP WAITING LISTS IN AMERICA





4 PEOPLE ON SOUTH CAROLINA ADAP WAITING LIST DIE DEC 2006

3 PEOPLE ON WEST VIRGINIA ADAP WAITING LIST DIE 2003

5 PEOPLE ON KENTUCKY ADAP WAITING LIST DIE 2003


The AIDS Drug Assistance Program (ADAP) is a national program that was started by the United States government through the Ryan White Act in 1987 to provide free or low cost drugs to people with HIV who have limited financial resources. Generally, these are people who have an income that is too high for Medicaid, but who do not have private health insurance.

ADAPs vary from state to state in terms of what drugs are available, what the income requirements are, and what measures each state has taken to support the program. Most states add money to the funding they receive from the federal government, but some do not. As a result, most states offer drugs to anyone who qualifies, while some have waiting lists. ADAPs act as the payer of last resort, a "safety net" that catches people with HIV who fall through the cracks in the U.S. health care system. With more than 152,000 enrollees, ADAP reaches about a quarter of all people with HIV who are currently in care. Almost 2/3 of ADAP clients are people of color, and half have incomes at or below the Federal Poverty Level ($9,800 a year for an individual).

The steps taken by some states to control the costs of ADAPs include waiting lists, limiting the number of drugs available (formularies) and lowering the income eligibility criteria.

As of January 26, 2012; there are currently 4,774 total individuals in 11 states according to the latest Kaiser Foundation Reports:

Alabama: 78 individuals;
Florida: 1,204 individuals
Georgia: 1,320 individuals
Idaho: 4 individuals
Louisiana: 671 individuals
Montana: 11 individuals
Nebraska: 23 individuals
North Carolina: 136 individuals
Ohio 0 individuals
South Carolina 224 individuals
Utah: 0 individuals
Virgina: 1,103 individuals


ADAPs with Other Cost-containment Strategies (instituted since April 1, 2009, as of April 13, 2011) Arizona: reduced formulary; Arkansas: reduced formulary, lowered financial eligibility to 200% FPL(disenrolled 99 clients in September 2009); Colorado: reduced formulary; Florida: reduced formulary, transitioned 5,403 clients to Welvista from 2/15-3/31/11; Georgia: reduced formulary, implemented medical criteria,participating in the Alternative Method Demonstration Project (AMDP); Idaho: capped enrollment; Illinois: reduced formulary, instituted monthly expenditure cap ($2,000 per client per month); Kentucky: reduced formulary; Louisiana: discontinued reimbursement of laboratory assays; North Carolina: reduced formulary; North Dakota: capped enrollment, instituted annual expenditure cap,lowered financial eligibility to 300% FPL (grandfathered in current clients above 300%FPL); Ohio: reduced formulary, lowered financial eligibility to 300% FPL (disenrolled 257 clients in July 2010); Puerto Rico: reduced formulary; South Carolina: lowered financial eligibility to 300% FPL (grandfathered in current clients above 300% FPL); Utah: reduced formulary, lowered financial eligibility to 250% FPL (disenrolled 89 clients in FY2010); Virginia: reduced formulary, transitioned 207 clients onto waiting list and PAPs,only distributing 30-day prescription refills; Washington: instituted client cost sharing, reduced formulary (for uninsured clients only),only paying insurance premiums for clients currently on antiretrovirals; Wyoming: reduced formulary, instituted client cost sharing.

So just because your state does not currently have an ADAP waiting lists or cutbacks does not mean people with HIV in other places in the United States are receiving treatment or quality health care.

In addition to waiting lists, ADAPs have also sought other ways to limit expenditures and some may already have quite limited formularies (number of HIV meds available), lower income eligibility compared to other states, and/or have instituted further restrictions in these and other areas even if they do not have an active waiting list in place.

For more detailed info, visit NASTAD.org or ATDN.org/access or copy this link in your browser: http://www.statehealthfacts.org/comparetable.jsp?ind=552&cat=11

The above link contains the entire reports including statistics, graphs, status of ADAPs and Ryan White Act.

What's that? You would like to use your voice and help those on ADAP waiting lists in the United States? You do not think it is right for Americans with HIV to die without access to lifesaving medications?

To help financially challenged Americans on ADAP waiting lists, you can contact the following governors whose states have ADAP waiting lists and voice your opinion.

Thanks for helping save lives by calling or writing to the above state's Governors today. An American man, woman or child should never have to die only because they can not afford the life saving HIV medications. My brothers and sisters should not be acceptable casualties in the war on HIV and AIDS in our country.

An American life is a terrible thing to waste!